| Author | Subject: A Family of Transplants due to Alport's Syndrome |
| Jojo Jumola | Posted At 04:43:37 04/15/2002 Hello everyone, to the staff and my fellow kidney patients. In our family, among 7 siblings, 5 of us have a hereditary kidney ailment diagnosed as Alport's Syndome. And 3 of us are already kidney transplants. I'm 30 yrs old, from Philippines. I underwent dialysis for 1,5 yrs and now i was transplanted 3 years ago and able to go back to my work again about 2 years already. Its really a difficult life for a kidney patient from dialysis and thru transplant life specially in financial areas, but consider us people, though we don't have resources we survive somehow in our case, as of now we struggle still but life goes on. we just left it to God. I just wanna inspire others somehow in my lil' way. I need your ideas too. |
| Beth Witten | Re: A Family of Transplants due to Alport's Syndrome (Currently 0 replies) Posted At 09:10:53 04/22/2002 You're definitely in the right place to seek from and give encouragement to others. The Life Options web site has a "Patient Stories" section that allows you to share your story and provide inspiration to others. You can send a brief profile of yourself with or without a picture and you can send tips for living with kidney disease for our "Showcase of Ideas" to lifeoptions@meiresearch.org. Research has shown that support is one of the keys to living well with kidney disease. |