| Author | Subject: Diagnosing Alports |
| Robin | Posted At 10:32:12 01/20/2003 Two questions.... - does anyone know of a website that I can search for a doctor in my area that specializes in Alports? (I live in Central NY but am willing to travel) - does anyone know of a place that is doing skin biopsies to diagnosis Alports? |
| Beth Witten | Re: Diagnosing Alports (Currently 2 replies) Posted At 22:21:11 01/21/2003 You might want to contact the American Society of Nephrology (202-659-0599) to see if anyone can help you locate a nephrologist who is studying Alports. There are some web sites that address Alports: 1)www.nlm.nih.gov/medlineplus/ency/article/000504.htm from the National Library of Medicine 2) www.cc.utah.edu/~cla6202/ASHP.htm is a web site for the Alport Syndrome Home Page that has links to other information. 3) www.cc.utah.edu/~cla6202/HNF.htm is the web site for the Hereditary Nephritis Foundation that has information about Alports, chats, links, etc. Hopefully you will be able to get the help you need from one of these resources. |